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Logo of D.E.S is it, DES Action group in France (Diethylstilbestrol)

Our Organization

D.E.S is it is a french non-profit Organization, founded in november, 2019 by Salomé and Déborah Maitrejean, two DES Granddaughters.

Pronunciation:

Why our Organization?

Following discussions with other DES grandchildren, we feel that we are not heard enough, not sufficiently represented, and not getting enough support by existing organizations.

In the same way, in our opinion, men exposed to DES. seems to be left out of DES debate.

As for DES mothers, many seem to be blamed, whereas it is laboratories and all those who made this tragedy possible those we condemn.
 

"You are a DES grandchild, so what?": We no longer want to hear these words from health professionals.

Also, there is no special healthcare for The DES third generation, we note with dismay that nothing is planned yet to stop DES consequences on future generations.

Finally, we have feeling that all problems related to DES exposure hasn't been revealed yet.

So, one of the goals of D.E.S is it will be to shed light on gray areas.

 

We refuse to live with the DES consequences. We do not accept injustice. We want the DES tragedy to stop.

We refuse to live with the DES consequences. We want the DES tragedy to stop.

For who?

D.E.S is it is for all people directly or indirectly exposed to DES, their families, their relatives and their healthcare providers.

D.E.S is it give a free members access to all its services, such as forums, blog, informations, polls... Membership is free for DES victims. This is why we rely on your generosity.

Learn more about the many ways you can support us.

Our vision

We envision a World where meaningful access to information about the dangerousness of drug medications that we consume, such as DES, will warn and save humanity from other health crisis.

Our mission

We aspire to advance knowledge of DES and its consequences:

  • gathering of data, information and facts through polls, surveys or studies;
  • providing a reliable and objective scientific base, and making it accessible through a work of popularization;
  • making proposals on the possible uses of existing and future scientific publications;
  • cooperating with Scientific research and other groups.

We want to submit proposals about:

  • the creation of a DES diagnosis;
  • DES healthcare;
  • compensation to victims of DES

D.E.S is it Mission is to face the big challenge of the recognition of this major health crisis.

To learn more about our mission statements, please download our Bylaws.

Our french group is for all generations of DES victims: Mothers, Daughters, Sons, Grandson, Granddaughter...

Our values

How we pursue our mission is as important as the mission itself, thus our Organization has cores values which shape the way we work. Our values ​​are the foundation of both our strategic decisions and our operational approach: we aim to do great things. D.E.S is it hopes to contribute to build a better world.

In order to be understood by the greatest number, we communicate in both English and French.

We act with integrity to strengthen right to information and and truth about DES and demand real health democracy.

We conduct ourselves with transparency and authenticity in all the aspects of our work and our Organization.

We provide fair services to all generations of DES victims: Mothers, Daughters, Sons, Grandson, Granddaughter...

We place particular emphasis on welcoming and including members who have been forgotten or left ignored until then: the third generation. We strive to highlight many voices and to reflect the reality and the diversity of the health effects prompted by direct or indirect DES exposure.

We propose an original work integrating Mind, Hand and Heart.

We welcome thoughtful risk taking and consider successes and failures as essential to advocating for the DES cause.

Our purpose is to alert about DES problems and take on the great challenge of claiming and obtaining: recognition, compensation and healthcare.

Logo of D.E.S is it, French nonprofit Organization for DES victims (diethylstilbestrol) tEAM